Thank you for visiting our website. We hope you find this site educational and inspirational as we search for a cure for Fragile X Syndrome affecting our two sons, Graham and Reid Pierce.
Please watch the video to get to know us; learn about Fragile X Syndrome and understand what you can do to help.
Visit our News & Events page to catch up on what we’ve been doing.
Thank you!
Michael & Kathan Pierce / Parents and Founders
Wow 2016. You made it reeeeeealllllly hard to like you. Like real hard. You took a cue from the end of 2015 when we received Graham’s Fragile X diagnosis and you kept the hits on coming. We were only 4 days in, just getting to know you, and you delivered the hardest news we’ve ever gotten: Reid had also tested positive for Fragile X. .
Traveling with toddlers is not for the faint of heart and, when you add the challenges due to Fragile X that the boys face, one could easily talk themselves right out of going anywhere that’s not within walking distance! But we really try not to let these issues stop us.
“Out of difficulties grow miracles”
- Jean de La Bruyere
...
that glimmer of hope that we hold onto so dearly has gotten brighter thanks to the overwhelming support from all of you – our village. We have been so humbled by the outpouring of kindness, compassion and generosity from our families, friends and community.
I’m in planning mode for my son Reid’s first birthday party and it has caused me do some reflecting on the past year. Wow – what a year this has been for us.
“School day, school days. Dear old Golden Rule days.”
Happy Fall everyone! This time of year just flies by….we will blink and it will be the holidays! I can’t believe that Graham has been in preschool for a month and a half!